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‘Act now on rugby players’ safety – don’t kick the can down the road’

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A huge number of ex-rugby players have reported suffering signs if neurodegenerative diseases

Action must be taken now to protect current and future generations of rugby players from brain injury – labelled as “the greatest threat to the worldwide game” – a newly-formed group of players and professionals from the sport has urged.

Progressive Rugby unites representatives from throughout the game – from former England international James Haskell through to Dr Barry O’Driscoll, a former advisor to the International Rugby Board (now World Rugby) – in backing calls for more to be done to ensure the safety of players. 

In an open letter to Sir Bill Beaumont, chair of World Rugby, the group says the organisation has a “moral and legal duty to minimise risk and to inform players and parents of the risk of brain damage from repeated knocks”.

Furthermore, it states that if nothing is done now, “the alternative is to ‘kick the can down the road’ for future generations”, urging the sport to follow the example of the NFL, which has “metamorphosed from a sport in denial to a proactive organisation”.

The group’s comments come as the pleas for urgent reform within the sport increase, with a group of former players – including England World Cup winner Steve Thompson – who are experiencing early-onset dementia symptoms preparing legal action against rugby’s governing bodies.

“We consider in view of the evidence of risk for traumatic brain injuries occurring in Rugby Union that more should be done to protect the rugby-playing community from the dangers of injury and that World Rugby has a moral and legal duty to minimise risk and to inform players and parents of the risk of brain damage from repeated knocks,” the group said in its letter.

Along with the call for action, the group outlined a plan of action to improve overall safety and protect players.

These proposals include a limit on contact in training, restricting match substitutions to injured players only – to reduce the amount of times fresh players are making high impact tackles on tired players – and a guaranteed minimum number of days off between seasons.

They would also include a career ‘health passport’ for players and increased education at all levels regarding head injuries and concussion management.

To help safeguard players from grassroots level up, training packages established to teach safe tackling techniques for young players.

Furthermore, the group recommends an extension of the minimum number of days before a player is allowed to return following concussion, under Return to Play rules, should be set at at least three weeks.

“We firmly support the core physicality that comes with an 80-minute game of rugby union and understand that the game cannot be turned back to a ‘rose-tinted’ memory of the pre-professional game,” the group concludes in its letter.

“Our proposed changes are essential to ensure the survival of the game in terms of long-term player welfare and playing numbers at all levels.

“The NFL has metamorphosed from a sport in denial to a proactive organisation with initiatives like concussion funding and changing protocols to the game, such as the regulation of contact in training, concussion spotters and a concussion tent at each game.

“Despite the current negativity surrounding the game, there is an opportunity for rugby to turn the page and follow the example of our American cousins. The current and future generations of players require urgent action to be assured that they will be adequately protected and cared for.”

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New company launched to drive forward Parkinson’s research

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Up to £800,000 will be invested over the next two years

Charity Parkinson’s UK is to launch a new company dedicated to driving forward research into Parkinson’s disease.

Vivifi Biotech has been created to lead and plan preparations for a new trial into the role of the restorative protein glial cell-derived neurotrophic factor (GDNF) in Parkinson’s.

Launched through the charity’s drug development arm, Parkinson’s Virtual Biotech, up to £800,000 will be invested over the next two years as efforts continue to find a life-changing new treatment for people living with the disease.

Plans for a new trial build on the initial groundbreaking clinical investigations in GDNF, the results of which proved inconclusive but did show some signs that the treatment may have started to regenerate participants’ dopamine-producing brain cells.

“The unwavering passion and determination of the GDNF participant group has ensured that the potential of GDNF, and the role of patients in research, has never been forgotten,” says Paul Jackson Clark, director of engagement at Parkinson’s UK.

“They’ve tirelessly campaigned, fundraised and shared their experience with us, enabling us all to get to this monumental point.

“We now have the chance to see if we can find a life-changing new treatment that people with Parkinson’s desperately need. There are still plenty of obstacles but this announcement gives us the opportunity to move things forward together.”

Parkinson’s UK was the major funder of the initial trial, which investigated whether boosting levels of GDNF could slow, stop or reverse the progression of Parkinson’s.

Tom Phipps was a participant in the GDNF trial.

“My outcome was as positive as I could have wished for, I feel the trial brought me some time and has delayed the progress of my condition,” he says.

“The trial participants have always believed in GDNF’s potential,” said Parkinson’s UK in their announcement.

“So have we and the other organisations involved in the trial.

“Some participants tell us they’re still experiencing the benefits, years on from undergoing this experimental therapy. We’ve been working with them since the end of the trial.

“Together, we want to make sure we’ve explored every option.”

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Community rehab

Music group launched to support BAME community

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Leicester Musical Memory Box is launching its online music project Geet Sangeet

A music group established to support people living with dementia, memory loss and brain injury has received funding to launch an online project for the South Asian and BAME community.

Leicester Musical Memory Box (LMMBox) was founded in July 2018, and since that time has grown from one group in the city to six, providing interactive music sessions for people of all ages and backgrounds, including a group specific to the South Asian community.

The group – which has two staff members who are fluent in Gujarati, Hindi, Punjabi and Urdu – aims to provide the local community with a supportive network and a safe space to explore the unique challenges that a brain injury may bring to individuals, as well as their families and carers.

The new online music project is named ‘Geet Sangeet’ – translated as ‘Songs Sung Together’ – and will incorporate music and cultural references specific to the South Asian community, led by group leader Beena Masand from LMMBox.

Each session will begin with gentle exercises to warm up the body and brain, followed by singing and discussion about various music, songs, and media.

Attendees will also receive their own ‘musical memory box’ in a bag to help increase the interactivity of the sessions.

The project has received funding from the new Local Connections Fund, and is in collaboration with Headway Leicester.

Music has proven benefits for people with memory problems or a brain injury, including enabling people to connect with past experience and enabling freedom of expression, confidence and independence.

Attendance at the groups also helps to improve mood and reduce feelings of social isolation.

“We know we are providing a vital service to our members and receive enquiries regularly,” says Kyle Newman, group leader and co-director of LMMBox.

“In spite of the lockdown, we are thrilled to be able to once again provide a culturally specific group for the South Asian community.

“We also know that the group leader needs to come from that community and have the music and cultural knowledge to be able to engage participants effectively.”

“We are delighted to collaborate with LMMBox and reach out to more people across Leicester who have been affected by brain injury,” adds Mary Goulty, service manager at Headway Leicester.

“There is a clear need for a support service within the BAME community and that’s why we launched our BAME group last year, which is providing a vital lifeline to brain injury survivors we support and their families.”

To contact LMMBox, visit www.leicestermusicalmemorybox.co.uk

For support with brain injury in the Leicester community, visit www.headwayleicester.org.uk.

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Art Therapy offers an emotional outlet for those living with a Traumatic Brain Injury (TBI)

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Masks not only allow us to hide our true feelings but to also express them without fear of judgement.

Being able to ‘hide’ one’s true self, may be a way, for others, to truly ‘show’ themselves.

For this reason, Chroma therapists began delivering Art Therapy sessions online to those living with a Traumatic Brain Injury (TBI) in an attempt to help them express their emotions in a creative, non-threatening way.

A TBI can have devastating effects upon a person’s mental health, as well as physical, with emotional issues caused by significant, sudden changes in appearance and abilities.

Studies have found Art Therapy to be effective in helping TBI patients with emotional expression, socialisation, emotional adaptation to mental and physical disabilities, and communication in a creative and non-threatening way.1

Self-expression is fundamental in processing the effects of a TBI. Take a look at the image below.

On the left is the base mask. During the process of art therapy, across a number of sessions, the participant talks, reflects and begins to create ideas or metaphors which then get placed onto the base mask. Often this depicts the face he presents to the outside world, in contrast with the dual parts of to his inner personality including a bright peaceful side and a dark, tumultuous side.

Based on the sessions, Chroma therapists are better able to gauge the patient’s feelings, discuss the final piece and help the patient begin to process their emotions.

In effect, art therapy offers a creative gateway to communication and used in this way, tries to enable the participant to externalise their inner thoughts and feelings.

As a therapy, it has been shown to help reduce feelings of stress, promote creativity and imagination as well as increase self-expression, confidence and communication.

Chroma began delivering these sessions as a way to allow clients to reveal thoughts and feelings about themselves which they may find hard to express, or may not even be aware of, and which may be being expressed through more difficult behaviours.

They also create an opportunity for greater communication, allowing therapists to gain a deeper understanding of the client’s thoughts, anxieties and feelings.

Being able to express themselves creatively helps the client reveal their true feelings, which in itself can be cathartic – a relief to release their emotions, in a personal, safe space.

Chroma continues to deliver these sessions online to help reach as many TBI sufferers across the UK as possible in an attempt to help them begin to process their emotions concerning the effects the TBI had upon them, with the outlook to help improve their mental wellbeing which in turn will help promote a positive outlook to life and rehabilitation outcomes.

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