The internet can often feel like a vapid place, propped up by self-interested, shallow interactions as users compete for the most subscribers, views and shares.
But reluctant YouTuber James Inkson Stevens has what most content creators don’t; he’s in regular contact with at least half of his subscribers.
He sometimes gets frustrated with making videos, and finds the process very tiring, but keeping Stevens going is the memory of how alone he felt 16 months ago, after he was assaulted and left with a traumatic brain injury.
Stevens, 35, was working as an actor in London before he decided to move back to Southampton, where his family live, to buy a flat.
He’d saved for a deposit and was viewing flats, and hoped to have his first home in within the next few months. But what happened during a friend’s birthday celebrations on March 1st last year completely derailed his plans.
In a strange twist of fate, Stevens had just been to visit his older sister, who was in the Wessex Neurological Centre after having an aneurysm a few days earlier. When he left to get the bus to town, he couldn’t have known that he’d be back there four hours later, as a patient himself.
At the pub that evening, Stevens got into a disagreement with a friend.
“It wasn’t a heated argument, more of an end-of-our-friendship sort of thing,” Stevens says.
“He was being nasty to people. He’d come to my birthday a few months before and done the same thing. He’d occasionally put me down, told me I was a failed actor, and he’d had enough chances. I walked away with my back to him.”
Stevens’ attacker, who was, he estimates, about four stone heavier than him, ran up behind him and punched the back of his head. Stevens’ skull cracked on the pavement, and while his friends waited for the ambulance to arrive, an off-duty nurse walking past spotted Stevens lying on the ground and noticed that it didn’t look like he was breathing.
Just as she went to feel Stevens’ pulse, he gasped for air. He was later told by specialists it’s possible his heart stopped and started up again on its own.
Before the attack, Stevens was working full time at a letting’s agency. He walked miles every day, went to the gym three times a week and spent a few hours every weekday writing a novel. Now, Stevens is staying with family, unable to work.
“The work ethic and the energy I had, I felt like someone broke in and stole it from me. The book is going a hell of a lot slower now,” he says.
He describes his life now as much like the recent lockdown.
“Life was like this before, for me. I see friends about twice a month; it takes a week for me to get back to normal energy again, but it’s worth it.”
His doctors explained to Stevens that traumatic brain injury was like a ‘muddy puddle’. They told him his recovery so far has been consistent with what they expected, but they can’t predict how it will go beyond the 18-month mark, in two months’ time.
Stevens’ short-term memory has taken the biggest hit, and he suffers with chronic neuro fatigue and pains across his head if he concentrates of exerts himself too much, and has chronic oversensitivity to loud noises.
When he came out of hospital, Stevens didn’t feel like he had the energy to retell what had happened to all his friends, so he filmed a video and posted it online.
He decided to continue making videos because he knows he can help encourage people to have positive attitude, when he’s feeling positive himself, and spread awareness.
“Having a strong support network helped me in the early days, but I still felt unbelievably alone. A friend told me about brain injury support groups on Facebook and I soon didn’t feel alone anymore. People were processing the same things I was going through,” Stevens says.
Stevens attributes his confidence to his career in acting, and says he feels lucky to have retained that.
“The more I research traumatic brain injury, I realised how lucky I was to still have that ability, and that the damage hadn’t been a bit to the left or the right.”
But he finds filming and uploading the videos tiring, and pushes himself because he wants to connect with others, and help others without a community connect with each other.
“It’s important to help in whatever way I can. It helps me feel less powerless. And this is the only way I can help.”
But he doesn’t want to portray his own recovery inaccurately.
“One viewer told me I seem high functioning. Maybe I am, it probably seems that way, but simple things take their toll,” he says.
“On the surface, particularly when I’ve had a coffee, I can seem normal. I was already a motormouth before, and my injury hasn’t affected that, but people don’t see how much making a video takes it out of me afterwards. You can’t get an accurate view of someone from 30 minutes a week.”
Stevens compares life before his brain injury to being a third of the way up the Snakes and Ladders board.
“When the brain injury happened, a snake came out of nowhere and I slipped to square one, but then the entire board flipped over and when it was rewritten it was a new game I’d never heard of and couldn’t understand. Every day I’m learning the rules.”
Impact during TBI can have effects years later – study
The force exerted on the brain during traumatic injury is linked to damage years after the initial event, research has revealed.
Findings of the new study have been hailed as having the potential to predict the severity of brain injuries and help influence new approaches going forward, particularly in the field of sport.
TBI has a number of immediate impacts, including physical effects like unconsciousness and bleeding, alongside the ‘hidden’ symptoms of memory loss, mood and personality changes, which may take much longer to develop.
However, the link between the mechanical forces that act on the brain during TBI and the resulting long-term changes is poorly understood.
Now, researchers from Imperial College London have shown a clear link between the forces acting on the brain during TBI and its associated long-term changes.
The study – ‘From biomechanics to pathology: predicting axonal injury from patterns of strain after traumatic brain injury’, which is published in Brain – combined a computational model of brain injury with experimental studies on rat brains.
“The initial damage during a traumatic brain injury takes only milliseconds to occur, but it triggers many changes that result in ongoing effects which can be felt years later,” says Dr Mazdak Ghajari, from the Dyson School of Design Engineering.
“Understanding the link between the two is crucial for predicting who is at risk for long-term damage, and how protection may be better designed to prevent this damage.”
The findings have the potential to make positive impacts in protective equipment, such as in the design of helmets.
Professor David Sharp, from the Department of Brain Sciences, says: “We are also looking at how the type of impacts experienced by American football players affects whether they lose consciousness, and whether new helmet designs might protect soldiers from the effects of blast waves following explosions.
“These types of studies can also help explain whether repeated small impacts, such as heading the ball in football, could lead to similar long-term brain injury.”
Previously, the team had built a human computer model to predict the location of long-term brain damage following TBI, focusing on the ‘white matter’ of the brain, which contains nerve fibres called axons which play a large role in the brain networks that are altered in long-term brain damage.
Now, they have tested this modelling approach to see if it can accurately predict the pattern of white matter damage in rats given mild or moderate TBI.
They simulated the rats’ brains during injury, revealing the location and duration of mechanical forces linked to damage. Using a precise experimental model, this damage was induced in the rat brain and followed up after several weeks, which correlates to years of changes in a human brain.
They found that the effect of shear stresses on the white matter helped to predict the location of long-term damage. Shear stresses push two parts of the same object, in this case the brain, in different directions.
The intensity of the shear at different locations caused by different impacts, for example what angle they come from, predicts where the most severe white matter damage will occur. This could potentially help doctors predict the likely long-term effects in patients who have suffered a TBI.
“Different types of injuries will cause different kinds of shear. With this new model we can now more accurately predict which injuries will cause severe, long-term damage, and potentially avert it,” continues Dr Ghajari.
“For example, motorbike accidents involve a lot of rotational movement, which causes lots of shear. We are studying dozens of bike helmets to see which best protect against excess rotation.”
First-of-its-kind post-Polio service created
A specialist neurophysio service to support people with Post Polio Syndrome (PPS), believed to be the only programme of its kind in the country, has been created.
PhysioFunction has established a dedicated offering for people who have had polio earlier in life, but for whom some effects have returned years later with the onset of PPS.
The programme, which incorporates aquatic and land-based physiotherapy, has attracted a number of people from around PhysioFunction’s base in Northampton, but through the addition of telerehab during lockdown, has involved participants from a much wider area.
PhysioFunction engages members of the British Polio Fellowship in its programme and has also secured funding from Rotary International in recognition of its innovation.
Led by neurophysiotherapist Kirsten Good, the specialist service was created in response to the needs of one client initially, but expanded once the demand for such bespoke therapy was realised.
PPS is estimated to affect up to 50 per cent of those who have had polio in younger years, and its symptoms can include decreasing muscular function or acute weakness, pain and fatigue.
“Initially, it started with one client who had a hip replacement after a fall, but wasn’t recovering as expected, he went to St Thomas’ Hospital in London and was diagnosed with PPS. He had polio as a child, but the effects of the fall, combined with the operation and the recovery process, had triggered PPS,” says Kirsten.
“Having developed something very specific in response to his needs, involving our hydrotherapy pool for aquatic physiotherapy, as well as land-based physio which includes the use of our Alter-G treadmill, we saw how well this approach worked.
“I had never worked with anyone with polio or PPS previously, but it has many symptoms in common with neurological conditions I regularly treat, and working with this client inspired me to develop an interest in this area.”
From there, PhysioFunction devised a programme built to the exact needs of people with PPS, incorporating sessions of up to 30 minutes involving hydrotherapy and equipment-based exercise.
“We have a number of polio survivors attending our groups every week, and the funding we have had to subsidise the programme has made it very affordable for them,” says Kirsten, who was named a Paul Harris Fellow by the Rotary Foundation of Rotary International for her work in developing the initiative.
“It has been very warmly received and our participants have such a fantastic ‘get up and go’ attitude. Perhaps because many had polio in childhood , they have always grown up with the long lasting effects and have learned to get on with their lives – but when we say ‘Have you tried this?’ they’re really keen to give things a go. It’s a very positive group.
“Some people initially aren’t confident in getting in and out of the pool, and the adversity to temperature changes is another big factor caused by polio, so we can vary it between land and water-based as is required.
“We also have some fitness and endurance sessions, which we offer more widely at PhysioFunction, but overexertion in exercise can exacerbate PPS symptoms, so again, this has been tailored and developed to the requirements of this condition.”
The addition of telerehab to the PPS programme during lockdown was initially greeted with some scepticism, but has now been embraced.
“I’m not sure everyone was 100 per cent keen on it initially, but it has worked well. We are able to involve new participants from some distance away, who may not have travelled to our sessions, and it has continued to build our community,” adds Kirsten.
STEPS makes great strides in its growth
A residential rehabilitation centre has increased staff numbers by 300 per cent after securing investment to boost its development in the three years since its opening.
STEPS Rehabilitation was established by sisters Toria Chan and Jules Leahy to address the lack of facilities for younger patients in need of intensive neurorehabilitation.
Since opening in 2017, the Sheffield-based centre has now become a national centre of excellence for people with neurological conditions, stroke, spinal cord injuries, acquired brain injuries and other complex trauma injuries.
To date, the centre, which also offers day services, has supported over 200 people with their rehabilitation.
The 23-bedroom centre has a range of facilities to enable it to deliver specialist therapy to its clients, including a therapy gym, hydrotherapy pool, alongside social space to facilitate social interaction.
Through securing a £250,000 loan, STEPS has been able to vastly develop its offering to clients, as well as develop its operational processes behind the scenes, and staff numbers have increased from 35 to to 140 in tandem.
After an initial investment of over £1.6 million in the creation of the specialist centre, on the site of a former Sheffield engineering works, the three-year loan enabled STEPS to get to its next level of development.
The investment, from NPIF – Mercia Debt Finance, managed by Mercia and part of the Northern Powerhouse Investment Fund, has now been fully repaid.
“We have been on an incredible journey since we launched in 2017 and we are thrilled to have been able to make such a huge impact on our clients’ lives,” says business development and founder Jules.
“NPIF has been an important part in helping our dream come to fruition, with its funding helping to facilitate considerable operational improvements to help get us to where we are today.”
Pete Sorsby, investment director at Mercia, said: “STEPS is a unique business.
“Toria, Jules and the management team have put in many years of hard work and investment to make the centre what it is today – a nationally recognised rehabilitation facility.
“With future expansion plans in the pipeline, I have no doubt that STEPS will continue to go from strength-to-strength, and we are pleased to have been on that journey with them.”
“NPIF was launched in 2017 and STEPS was one of our earliest investments, so it has been excellent to watch it grow and excel over the last few years,” adds Sean Hutchinson at British Business Bank.”
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